NARCOLEPSY SUPPORT AUSTRALIA
Narcolepsy Support Australia is a local support group set up by a family whose son was recently diagnosed with Narcolepsy with cataplexy. With little support available in Brisbane Australia they set up an online support community to connect with other sufferers. We became a registered charity in 2013 and now work under the name Narcolepsy Australia. We run meet ups for our members in many states in Australia and we are aiming to host them in all states in the near future. We host regular educational webinars and have a very active closed discussion group on Facebook. We are currently planning our Inaugural Patient Conference in Surfers Paradise Queensland on May 1st-3rd 2015. Dr Emannuel Mignot and Julie Flygare are our confirmed keynote speakers.
With our many support services on offer we hope to be a vital support to Australians affected by Narcolepsy, and to raise awareness of Narcolepsy in the wider community.
Melissa Jose our President/Trustee successfully lobbied the TGA for the down scheduling of Sodium Oxybate to enable the prescribing of Xyrem in Australia. The implementation date for the down scheduling is October 1 2014.
From small beginnings amazing things can happen.
With our many support services on offer we hope to be a vital support to Australians affected by Narcolepsy, and to raise awareness of Narcolepsy in the wider community.
Melissa Jose our President/Trustee successfully lobbied the TGA for the down scheduling of Sodium Oxybate to enable the prescribing of Xyrem in Australia. The implementation date for the down scheduling is October 1 2014.
From small beginnings amazing things can happen.