1st-3rd May 2015
We hosted our inaugural patient conference which was an outstanding success. Our keynote presenters Dr Mignot and Julie Flygare were very informative and inspirational. A huge thank you to all our volunteers who helped make the weekend run so smoothly, and to all our members who travelled across the country to attend it, we hope you enjoyed it!
21st March 2015
Our founder Melissa Jose and her son Lucas appeared on Weekend Sunrise today. Here's the link for those that missed it.
https://au.tv.yahoo.com/video/watch/26746096/struggling-to-stay-awake/
https://au.tv.yahoo.com/video/watch/26746096/struggling-to-stay-awake/
17th January 2014
We have a new presentation to help your loved ones friends and colleagues to understand a little more about narcolepsy. Please share it.
8th March 2013
A story on Narcolepsy see our story and that of another family with a young son with Narcolepsy at 6.30pm Channel 7
9th March 2013
Suddenly Sleepy Saturday..join us for our first national event! Further information to follow shortly
7th February 2013
One of our members Roslyn has done a story on Narcolepsy in this weeks "That's Life!" magazine. Please check it out. Thanks Ros we think you're a star!
10th September 2012
Dee Daud is a true inspiration a man who is prepared to stand up and be counted. His tireless efforts to raise awareness of Narcolepsy and cataplexy through his you tube channel and TV interviews is truly amazing! THANK YOU DEE!!
9th September 2012
The Sunday Night Program airs on Channel 7 at 6:30pm This week the show features a story on Narcolepsy!
http://au.news.yahoo.com/video/watch/14800716/while-you-were-sleeping/
http://au.news.yahoo.com/video/watch/14800716/while-you-were-sleeping/
4th September 2012
Sign Harry's Petition
Help Harrison White access "Modafinil" on the PBS. Make a difference to this little boy and his family!
http://www.gopetition.com/petitions/harry-s-hope.html
Help Harrison White access "Modafinil" on the PBS. Make a difference to this little boy and his family!
http://www.gopetition.com/petitions/harry-s-hope.html
27th August 2012
"Harry's Hope"
Harry is a 6 year old Australian boy suffering from the effects of Narcolepsy. He is unable to access the medication "Modafinil" under the Pharmaceutical Benefits Scheme (PBS). Read more about his story here.
http://www.smh.com.au/national/health/children-forced-to-try-dangerous-drug-says-doctor-20120826-24ukw.html
Harry is a 6 year old Australian boy suffering from the effects of Narcolepsy. He is unable to access the medication "Modafinil" under the Pharmaceutical Benefits Scheme (PBS). Read more about his story here.
http://www.smh.com.au/national/health/children-forced-to-try-dangerous-drug-says-doctor-20120826-24ukw.html
19-21st October 2012
Narcolepsy Network 27th Annual Conference
This year we are attending the Narcolepsy Network Conference in Cleveland Ohio. We are hoping to make some great new connections and attend many informative sessions....stay tuned for our updates.
This year we are attending the Narcolepsy Network Conference in Cleveland Ohio. We are hoping to make some great new connections and attend many informative sessions....stay tuned for our updates.
5th May 2012
Ipswich Festival Parade
This year a group of volunteers marched in the Ipswich Festival Parade to raise awareness of Narcolepsy
This year a group of volunteers marched in the Ipswich Festival Parade to raise awareness of Narcolepsy
