XYREM
As most of you are probably aware "Xyrem" is the first line treatment for Narcolepsy with Cataplexy in both the USA and UK, however it is illegal here in Australia.At the recent Narcolepsy Network Conference we met with the rep from Jazz Pharmaceuticals and advised them of the growing Narcolepsy population in Australia and the possibility of them importing "Xyrem" into Australia.We need to stand united and let our Government know that we need this drug made available for Narcolepsy sufferes here in Australia.
WHAT CAN YOU DO TO HELP!
Have your voice heard! To help the Government understand the need for a 21st Century Narcolepsy / Cataplexy treatment you can:
* Send an email to the Government;
* Complete the online petition; and
* Ask others to do the same.
WHAT CAN YOU DO TO HELP!
Have your voice heard! To help the Government understand the need for a 21st Century Narcolepsy / Cataplexy treatment you can:
* Send an email to the Government;
* Complete the online petition; and
* Ask others to do the same.